Building a stronger voice for IPF

Written Declaration 26 on IPF is adopted!

The European Idiopathic Pulmonary Fibrosis and related disorders federation (EU-IPFF) has promoted the Written Declaration 26/2016 on idiopathic pulmonary fibrosis which has been formally adopted this week by the European Parliament with 388 signatures. It was presented on the 11th of April 2016 by 16 Members of the European Parliament from 9 EU Member States.

Around 111,000 Europeans have been diagnosed with IPF so far and an additional 35,000 people are diagnosed every year. As the disease is difficult to diagnose and it lacks a cure, rapid deterioration in patients can lead to death between 2-5 years after diagnosis.

This Written Declaration aims at promoting better cooperation between Member States to address existing health inequalities and promote research activities to find its cause and a cure; it encourages the European Commission and the Member States to work together so as to support the need for timely access to treatment while also addressing the delays in approval by national regulators of authorized medication, and address the existing inequalities in access to lung transplantation.

The Written Declaration will be formally adopted by the European Parliament on the occasion of the next Plenary session in Strasbourg on the week of September 12th and will be forwarded to the European Commission and the European Council for answer, together with the names of the signatories. Then, the European Commission and European Council will have to inform Parliament about the intended follow-up within three months from its receipt.

We are very grateful to all MEPs who signed Written Declaration on IPF
for having given such important signal to our community that the lives of IPF patients matter and deserve political attention:

Isabella Adinolfi, Marco Affronte, Laura Agea, Clara Eugenia Aguilera García, Daniela Aiuto, Marina Albiol Guzmán, Martina Anderson, Eric Andrieu, Laima Liucija Andrikienė, Maria Arena, Pascal Arimont, Marie-Christine Arnautu, Petras Auštrevičius, Inés Ayala Sender, Pilar Ayuso, Georges Bach, Zigmantas Balčytis, Hugues Bayet, Catherine Bearder, Beatriz Becerra Basterrechea, Heinz K. Becker, Tiziana Beghin, Ivo Belet, Brando Benifei, Xabier Benito Ziluaga, Goffredo Maria Bettini, Izaskun Bilbao Barandica, Dominique Bilde, Malin Björk, José Blanco López, Vilija Blinkevičiūtė, Franc Bogovič, Simona Bonafè, Michał Boni, David Borrelli, Biljana Borzan, Victor Boştinaru, Lynn Boylan, Paul Brannen, Mercedes Bresso, Renata Briano, Klaus Buchner, Daniel Buda, Cristian-Silviu Buşoi, Soledad Cabezón Ruiz, Alain Cadec, Wim van de Camp, Nicola Caputo, Matt Carthy, David Casa, Fabio Massimo Castaldo, Pilar del Castillo Vera, Lorenzo Cesa, Dita Charanzová, Nessa Childers, Caterina Chinnici, Lefteris Christoforou, Kostas Chrysogonos, Salvatore Cicu, Alberto Cirio, Deirdre Clune, Carlos Coelho, Sergio Gaetano Cofferati, Lara Comi, Therese Comodini Cachia, Anna Maria Corazza Bildt, Ignazio Corrao, Silvia Costa, Andrea Cozzolino, Pál Csáky, Edward Czesak, Peter van Dalen, Daniel Dalton, Rosa D'Amato, Seb Dance, Viorica Dăncilă, Nicola Danti, Michel Dantin, Philippe De Backer, Paolo De Castro, Mady Delvaux, Isabella De Monte, Jean-Paul Denanot, Gérard Deprez, Marielle de Sarnez, Mircea Diaconu, Agustín Díaz de Mera García Consuegra, Martina Dlabajová, Anneliese Dodds, Diane Dodds, Ian Duncan, Angel Dzhambazki, Stefan Eck, Christian Ehler, Georgios Epitideios, Rosa Estaràs Ferragut, Eleonora Evi, Tanja Fajon, José Inácio Faria, José Manuel Fernandes, Jonás Fernández, Laura Ferrara, João Ferreira, Santiago Fisas Ayxelà, Raffaele Fitto, Luke Ming Flanagan, Monika Flašíková Beňová, Eleonora Forenza, Anna Elżbieta Fotyga, Lampros Fountoulis, Eugen Freund, Doru-Claudian Frunzulică, Mariya Gabriel, Michael Gahler, Ildikó Gáll-Pelcz, Francesc Gambús, Iratxe García Pérez, Eider Gardiazabal Rubial, Elisabetta Gardini, Enrico Gasbarra, Elena Gentile, Arne Gericke, Lidia Joanna Geringer de Oedenberg, María Teresa Giménez Barbat, Michela Giuffrida, Charles Goerens, Ana Gomes, Tania González Peñas, Esteban González Pons, Beata Gosiewska, Luis de Grandes Pascual, Maria Grapini, Karoline Graswander-Hainz, Nathalie Griesbeck, Theresa Griffin, Iveta Grigule, Françoise Grossetête, Enrique Guerrero Salom, Sylvie Guillaume, Antanas Guoga, Takis Hadjigeorgiou, Marian Harkin, Rebecca Harms, Brian Hayes, Esther Herranz García, György Hölvényi, Danuta Maria Hübner, Ian Hudghton, Filiz Hyusmenova, Iliana Iotova, Carlos Iturgaiz, Cătălin Sorin Ivan, Ivan Jakovčić, Ramón Jáuregui Atondo, Danuta Jazłowiecka, Teresa Jiménez-Becerril Barrio, Philippe Juvin, Karin Kadenbach, Eva Kaili, Jarosław Kalinowski, Rikke Karlsson, Manolis Kefalogiannis, Tunne Kelam, Jan Keller, Seán Kelly, Afzal Khan, Jude Kirton-Darling, Dieter-Lebrecht Koch, Jeppe Kofod, Jaromír Kohlíček, Kateřina Konečná, Ádám Kósa, Stelios Kouloglou, Andrey Kovatchev, Agnieszka Kozłowska-Rajewicz, Barbara Kudrycka, Eduard Kukan, Miapetra Kumpula-Natri, Kostadinka Kuneva, Cécile Kashetu Kyenge, Merja Kyllönen, Miltiadis Kyrkos, Georgios Kyrtsos, Alain Lamassoure, Philippe Lamberts, Esther de Lange, Marju Lauristin, Giovanni La Via, Constance Le Grip, Ryszard Antoni Legutko, Jo Leinen, Jeroen Lenaers, Javi López, Paloma López Bermejo, Antonio López-Istúriz White, Bernd Lucke, Elżbieta Katarzyna Łukacijewska, Krystyna Łybacka, Linda McAvan, Emma McClarkin, Mairead McGuinness, Monica Macovei, Ivana Maletić, Svetoslav Hristov Malinov, Curzio Maltese, Ramona Nicole Mănescu, Vladimír Maňka, Louis-Joseph Manscour, Marian-Jean Marinescu, António Marinho e Pinto, David Martin, Edouard Martin, Fulvio Martusciello, Jiří Maštálka, Barbara Matera, Marisa Matias, Gabriel Mato, Stefano Maullu, Emmanuel Maurel, Costas Mavrides, Nuno Melo, Roberta Metsola, Iskra Mihaylova, Miroslav Mikolášik, Francisco José Millán Mon, Marlene Mizzi, Sorin Moisă, Csaba Molnár, Claude Moraes, Luigi Morgano, Krisztina Morvai, Alessia Maria Mosca, Ulrike Müller, Alessandra Mussolini, József Nagy, Javier Nart, Victor Negrescu, Norica Nicolai, Luděk Niedermayer, Péter Niedermüller, Liadh Ní Riada, Lambert van Nistelrooij, Andrey Novakov, Younous Omarjee, Artis Pabriks, Maite Pagazaurtundúa Ruiz, Rolandas Paksas, Pier Antonio Panzeri, Massimo Paolucci, Demetris Papadakis, Dimitrios Papadimoulis, Gilles Pargneaux, Ioan Mircea Paşcu, Aldo Patriciello, Emilian Pavel, Piernicola Pedicini, Alojz Peterle, Marijana Petir, Pina Picierno, Tonino Picula, Bolesław G. Piecha, Sirpa Pietikäinen, João Pimenta Lopes, Georgi Pirinski, Julia Pitera, Gianni Pittella, Marek Plura, Pavel Poc, Miroslav Poche, Salvatore Domenico Pogliese, Stanislav Polčák, Tomasz Piotr Poręba, Gabriele Preuß, Franck Proust, Carolina Punset, Emil Radev, Jozo Radoš, Laurenţiu Rebega, Terry Reintke, Christine Revault D'Allonnes Bonnefoy, Sofia Ribeiro, Frédérique Ries, Dominique Riquet, Michèle Rivasi, Liliana Rodrigues, Inmaculada Rodríguez-Piñero Fernández, Claude Rolin, Bronis Ropė, Fernando Ruas, Tokia Saïfi, Sofia Sakorafa, Massimiliano Salini, Lola Sánchez Caldentey, Alfred Sant, Daciana Octavia Sârbu, Petri Sarvamaa, David-Maria Sassoli, Algirdas Saudargas, Jean-Luc Schaffhauser, Christel Schaldemose, Elly Schlein, Helmut Scholz, Annie Schreijer-Pierik, Jordi Sebastià, Olga Sehnalová, Jasenko Selimovic, Remo Sernagiotto, Ricardo Serrão Santos, Czesław Adam Siekierski, Siôn Simon, Branislav Škripek, Davor Škrlec, Monika Smolková, Igor Šoltes, Renate Sommer, Renato Soru, Joachim Starbatty, Ivan Štefanec, Jutta Steinruck, Jaromír Štětina, Helga Stevens, Catherine Stihler, Dubravka Šuica, Patricija Šulin, Pavel Svoboda, Neoklis Sylikiotis, Eleftherios Synadinos, Tibor Szanyi, Adam Szejnfeld, Antonio Tajani, Hannu Takkula, Dario Tamburrano, Claudiu Ciprian Tănăsescu, Charles Tannock, Claudia Țapardel, Marc Tarabella, Indrek Tarand, Keith Taylor, Pavel Telička, Eleni Theocharous, Patrizia Toia, Ruža Tomašić, Romana Tomc, Estefanía Torres Martínez, Evžen Tošenovský, Ramon Tremosa i Balcells, Mihai Ţurcanu, Claude Turmes, Kazimierz Michał Ujazdowski, István Ujhelyi, Traian Ungureanu, Ernest Urtasun, Vladimir Urutchev, Viktor Uspaskich, Inese Vaidere, Ivo Vajgl, Ramón Luis Valcárcel Siso, Adina-Ioana Vălean, Elena Valenciano, Marco Valli, Kathleen Van Brempt, Tom Vandenkendelaere, Geoffrey Van Orden, Hilde Vautmans, Miguel Viegas, Daniele Viotti, Elissavet Vozemberg-Vrionidi, Jarosław Wałęsa, Julie Ward, Josef Weidenholzer, Bogdan Brunon Wenta, Lieve Wierinck, Jadwiga Wiśniewska, Anna Záborská, Theodoros Zagorakis, Boris Zala, Pablo Zalba Bidegain, Flavio Zanonato, Tomáš Zdechovský, Janusz Zemke, Gabriele Zimmer, Jana Žitňanská, Kosma Złotowski, Damiano Zoffoli, Carlos Zorrinho, Marco Zullo, Milan Zver, Tadeusz Zwiefka.