Sunday September 23rd , from 13.00 – 14.00hr

>> Siena | Italy

Patient Day, organized by Mario Crivaro Onlus and AO Policlinico Le Scotte

Mario Crivaro Onlus

> Informative event for patients and their relatives with Keynote speaker from the IPF expert center (Prof. Paola Rottoli) and Sandro Crivaro, President of the Mario Crivaro onlus patients association. Media invited. http://www.mariocrivaroonlus.it/default.asp?idm=2

Hotel Poggio Bonelli, Castelnuovo Berardenga, Siena

http://www.mariocrivaroonlus.it/default.asp?idm=2

Thursday September 27th , from 17.00 – 18.00hr

>> Milano | Italy

Patient Day, organized by Ospedale San Giuseppe

Pneumologia | Ospedale San Giuseppe

> Informative event for patients and their relatives with Keynote speaker from the IPF expert center (Prof. Sergio Harari). Media invited. http://www.ilpolmone.com/tool/home.php

Ospedale San Giuseppe Aula Marchesi, via San Vittore 12, Milano

. http://www.multimedica.it/it/hospital/ospedale-san-giuseppe/030367

Wednesday September 26th , from 16.00 – 17.00hr

>> Monza | Italy

Patient Day, organized by AO S. Gerardo Monza

Pneumologia | Nuovo Ospedale San Gerardo

> Informative event for patients and their relatives with Keynote speaker from the IPF expert center (Prof. Alberto Pesci). Media invited. http://www.hsgerardo.org/

Nuovo Ospedale San Gerardo, via Pergolesi 33, Monza

http://www.hsgerardo.org/node/47

Friday September 28th , from 12.00 – 13.00hr

>> Torino | Italy

Patient Day, organized by AO San Luigi Orbassano

Ambulatorio Interstiziopatie (Prof. Carlo Albera)

> Informative event for patients and their relatives with Keynote speaker from the IPF expert center (Prof. Carlo Albera) in concomitance with a scientific meeting (RIPID Workshop). Media invited. http://www.sanluigi.piemonte.it/

Az Osp San Luigi Gonzaga, Regione Gonzole 10, Orbassano

Saturday September 29th , from 10.30 – 12.30hr

>> Rome | Italy

Patient Day, organized by AMA FUORI DAL BUIO and AIMIP

AIMIP | Associazione Italia Malattie Interstiziali del Polmone

AMA FUORI DAL BUIO | Associazione Malati Autoimmuni Orfani Rari

> Informative event “I Medici incontrano i pazienti” for patients and their relatives with Keynote speaker from the Pulmunologist expert centers in Rome (Prof. Saltini, Prof. Mariotta, Prof. Valente, Prof. Palange, Prof. Carlone and others) and with the President of AIMIP Fabrizio Di Meo, with information stands to supply patients with information on IPF. Media invited. www.aimip.org | www.fuoridalbuio.it

Hotel Parco dei Principi, via Frescobaldi 5, Roma

Tuesday September 25th , from 10.00 – 12.00hr

>> Catania | Italy

Patient Day, organized by Policlinico “G. Rodolico” with the support of AMA

Policlinico Universitario “G. Rodolico” Catania

> Informative event for patients and their relatives with Keynote speaker from the IPF expert center in Catania (Prof. Vancheri) and with supporting presence of Rosalba Mele, President of AMA patients association, with information stands to supply patients with information on IPF. Media invited. www.policlinicovittorioemanuele.it

Policlinico Universitario “G. Rodolico” edificio 4 piano terra Aula 1, via Santa Sofia 78, Catania

http://www.policlinicovittorioemanuele.it/sites/default/files/avvisi/Settimana%20Mondiale%20della%20Fibrosi%20Polmonare%20Idiopatica%20-%20sett%202012.pdf

Wednesday September 26th , from 18.00 – 19.00hr

>> Ravenna | Italy

Patient Day, organized by the AMMP

AMMP | Associazione Morgagni Malattie Polmonari

Public event at Feltrinelli bookstore to highlight the importance of scientific research and the impact of healthcare discoveries in the human life. Speakers will be Prof. Poletti and the book writer Eugenio Baroncelli, winner of 2011 Mondello award.Media invited. www.ammpforlung.it

Libreria Feltrinelli via Diaz 14, Ravenna

http://www.ammpforlung.it/news-ed-eventi/50-ipf-world-week.html

 

 

Monday September 24th , from 15.30 – 16.30hr

>> Forlì | Italy

Patient Day, organized by the AMMP

AMMP | Associazione Morgagni Malattie Polmonari

Informative event for patients and their relatives with Keynote speaker from the IPF expert center in Forlì (Prof. Poletti) and AMMP patients association, with information stands to supply patients with information on IPF. Institutions and sportsman representatives will participate. Media invited. www.ammpforlung.it

Ospedale Morgagni-Pierantoni via Forlanini 34, Forlì

http://www.ammpforlung.it/news-ed-eventi/50-ipf-world-week.html

SABATO 22 SETTEMBRE dalle 15.30 alle 18.00

>> MODENA

Workshop > pazienti e familiari:

GLOBAL IPF AWARENESS DAY | Pulmonary Fibrosis Foundation

DIRETTA WEB DA MODENA | LIVE FROM MODENA:

Come parte della prima Giornata Globale della Fibrosi Polmonare, la fondazione “darà il via” alla sua iniziativa europea di gruppi di supporto con una trasmissione in diretta web che informerà sul tema “Vivere con la fibrosi polmonare”, il 22 settembre. La diretta web avrà luogo a Modena, Italia, all'Università di Modena e Reggio Emilia, e a Denver, Colorado, al National Jewish Health. In aggiunta alle località di trasmissione a Modena e Denver, sarà possibile guardare i webcasts nei centri ILD in Europa e negli Stati Uniti. Pazienti, accompagnatori, e familiari avranno la possibilità di guardare insieme la presentazione in un luogo comodo. Un esperto sarà presente in questi luogo per rispondere a qualsiasi domanda. La seduta a Modena comincerà alle 15:30 (CEST); sarà presentata in inglese con traduzione simultanea in francese, tedesco, italiano e spagnolo. Le sedute a Denver cominceranno alle 10.00 (MDT). Inoltre, la fondazione avrà copie tradotte della Guida Informativa Per Pazienti Di Fibrosi Polmonare disponibili da scaricare, stampare, e distribuire. Entrambe le trasmissioni web saranno registrate e disponibili da scaricare su richiesta su www.pulmonaryfibrosis.org.

presso Complesso S. Geminiano, Università di Modena e Reggio Emilia | Via S. Geminiano, 3

http://pulmonaryfibrosis.org/awareness2012/globalday | http://www.livingwithpulmonaryfibrosis.org/

DOMENICA 23 SETTEMBRE dalle 16.00 alle 18.00

>> MODENA

Testimonianza

RESPIRERO' ANCORA | Giovanna Corder

Giovanna Corder |  presenta il libro in cui racconta la sua esperienza di malata di IPF, diagnosticata nel 1997 quando lei aveva 37 anni. Il trapianto di polmone le ha ridato una vita normale.  Questo incontro vuole lanciare un messaggio di speranza ai pazienti in lista di trapianto, promuovere la cultura del dono e, grazie all'intervento del Prof. Luca Richeldi, mettere a fuoco dal punto di vista medico, le difficoltà per i pazienti affetti da IPF di accesso a questo tipo d'intervento. L'evento è promosso da AMA fuori dal buio in collaborazione con AIDO, Associazione Italiana Donatori di Organi Tessuti Cellule. Il ricavato della vendita del libro andrà all’Unione Trapiantati Polmone di Padova.

presso LIBRERIA LA FELTRINELLI | Via Cesare Battisti, 17

Read more: DOMENICA 23 SETTEMBRE dalle 16.00 alle 18.00

LUNEDI' 24 SETTEMBRE dalle 9.00 alle 17.00

>> MODENA

INFO POINT

presso AOU Policlinico di Modena | Atrio Portineria Centrale | ingresso 1

distribuzione di materiale informativo ed ECOgadget dell'IPF WORLD WEEK.

SABATO 29 SETTEMBRE dalle 9.00 alle 24.00

>> MODENA

SUPPORT GROUP | Pulmonary Fibrosis Foundation

mattino dalle 10.00 alle 13.00:
Workshop > medici, infermieri, facilitatori:
Complesso S. Geminiano, Università di Modena e Reggio Emilia | Via S. Geminiano, 3
http://pulmonaryfibrosis.org/leaderworkshop

pomeriggio dalle 16.00 alle 21.00
FIATO ALLA SPERANZA!

“SAURO'S BAND

Per le vie del centro storico della città nell'ambito del Tributo a Pierangelo Bertoli | Largo S. Giorgio - Piazzetta S. Eufemia - Largo Porta Bologna - Piazza Mazzini . Piazza Grande
http://www.comune.modena.it/salastampa/comunicati-stampa/2012/9/modena-il-29-settembre-tanti-big-per-pierangelo-bertoli

INFO POINT

Piazza Mazzini
distribuzione di materiale informativo e ECOgadget dell'IPF WORLD WEEK.

 

DOMENICA 30 SETTEMBRE dalle 9.00 alle 17.00

>> MODENA

INFO POINT

Piazza Mazzini

distribuzione di materiale informativo ed ECOgadget dell'IPF WORLD WEEK.

Wednesday September 26th , from 12.30 – 16.30hr

>>Leeds | United Kingdom

Patient Day, organized by the British Lung Foundation (BLF) North

Want to know more about pulmonary fibrosis?| British Lung Foundation (BLF) North

To mark World IPF Week, the British Lung Foundation (BLF) North region is holding a half day meeting for people affected by idiopathic pulmonary fibrosis (IPF), their friends, family and carers. Come along and learn more about IPF and its management from experts in this condition and hear how the BLF can support you. REGISTRATION REQUIRED; This email address is being protected from spambots. You need JavaScript enabled to view it.; http://www.blf.org.uk

Double Tree Hilton Hotel (formerly Mint Hotel) Granary Wharf, Leeds

http://www.blf.org.uk/Event/Detail/Idiopathic-Pulmonary-Fibrosis-Event

Friday September 28th , from 13.00 – 18.30hr

>> Essen | Germay

Patient Day, organized by the German Pulmonary Fibrosis Association

Patiententag zur Lungenfibrose | German Pulmonary Fibrosis Association

Informative event for patients and their relatives with speaker from the IPF expert center in Solingen (Prof. Randerath), with information stands to supply patients with information on IPF. Media invited. www.lungenfibrose.de

Haus der Technik e.V. Hollestr.1, 45127 Essen

http://www.lungenfibrose.de/ai1ec_event/2-patiententag-zur-lungenfibrose-wabenlunge? instance_id=27

Friday September 28th , from 11.00 – 13.00hr

>> Berlin | Germany

Patient Day, organized by the Berlin Pulmonary Fibrosis Association

Patiententag zur Lungenfibrose | SHG Lungenfibrose (Brandenburg u. Umgebung)

Event for patients and family with Keynote speakers from 2 expert centers in Berlin (Dr. Schönfeld and Dr. Wilke). Press release on the event and the IPF Week sent to the regional media. Media invited. Information stands to supply patients with information on IPF. www.lungenfibrose.de

Seminaris Campus Hotel, Takustr. 39, 14195 Berlin

http://www.lungenfibrose.de/ai1ec_event/berliner-patiententag?instance_id=25

September 27th

>> Madrid | Spain

Media Event, with the AFEFPI patient organization and Foro de Pacientes association

’IPF Space’|AFEFPI|Foro de Pacientes

Agenda PRESENTACIÓN SEMANA DE LA FIBROSIS PULMONAR IDIOPÁTICA MADRID, JUEVES 27 SEPTIEMBRE Hospital La Princesa, Aula Respira - 10:15h Llegada de los doctores, representante de AFEFPI y paciente con FPI al lugar de la presentación (Aula Respira) - 10:30h Llegada de los medios de comunicación convocados - - 10: 45h Inicio de la presentación: Bienvenida a cargo del Dr. Julio Ancochea - Manifiesto sobre las enfermedades huérfanas (5’) A cargo del Dr. Albert Jovell, Presidente del Foro Español de Pacientes - Reto FPI (5’) Presentación sobre qué es la FPI a cargo del Dr. Ancochea - Diagnóstico multidisciplinar de la FPI (10’) Presentación de casos clínicos a cargo de: NEUMÓLOGOS (Dr. Julio Ancochea y Dra. Claudia Valenzuela) RADIÓLOGOS (Dra. Paloma Caballero y Dra. Mª José Olivera) PATÓLOGOS (Dr. Carlos Gamallo y Dra. Mercedes Guijarro) - Puerta abierta a la esperanza (5’) Perspectivas de tratamiento de la FPI, a cargo del Dr. Ancochea - En primera persona (10’) Testimonio de 2 pacientes con FPI - 11:30h Turno de preguntas. A la finalización del turno de preguntas, visita a las instalaciones del Servicio de Neumología del hospital por parte de los medios que lo hayan solicitado.<\p>

Hospital La Princesa in Madrid

http://www.afefpi.org

September 25th

>> Barcelona | Spain

Media Event,

’IPF Space’|Media Meeting

Agenda PRESENTACIÓN SEMANA DE LA FIBROSIS PULMONAR IDIOPÁTICA HOSPITALET DE LLOBREGAT (BARCELONA), MARTES 25 SEPTIEMBRE Unidad Funcional de Intersticio Pulmonar (UFIP) Hospital Universitari de Bellvitge - De 9 a 14h Consulta de pacientes con FPI, exploraciones para diagnóstico y control evolución, aplicación de terapias avanzadas (anti-fibróticos). - 9 a 11h: Consulta Externa UFIP (primeras visitas y seguimiento) - 11 a 12.30h: Gabinete de exploraciones respiratorias para el diagnóstico y control de FPI (pruebas de función respiratoria y fibrobroncoscopia con toma de muestras). - 12.30 a 14h: Hospital de Día de la UFIP (ensayos clínicos, anti-fibróticos, oxigenoterapia, control post-trasplante, participación en estudios experimentales) Durante la mañana posibilidad de visitar las instalaciones del Servicio de Neumología, divididas en: - Área General - Edificio Consulta Externa - Edificio Investigación - De 15 a 16:30h Reunión multidisciplinar del Comité de Intersticio-UFIP: tiene lugar dos veces al mes para discutir casos clínicos difíciles (diagnóstico-tratamiento) en un ambiente muy distendido. Participan unas 10 personas expertas en intersticio pulmonar y acuden médicos residentes y estudiantes universitarios (licenciatura y masters) para formación: - Neumólogos (clínicos y fisiopatólogos respiratorios) - Patólogos - Radiólogos - Cirujanos torácicos - Medicina Interna - Estudiantes y residentes de las diferentes especialidades médicas * Se ofrecerá a los medios de comunicación la posibilidad de encontrarse, durante el 25 de septiembre, con pacientes con FPI y con médicos implicados en su tratamiento, la asistencia a la reunión del Comité de Intersticio y la visita de las instalaciones del Servicio de Neumología <\p>

http://www.afefpi.org

Hospital Bellvitge in Barcelona

http://www.afefpi.org

September 24th – 28th

>>Madrid & Barcelona | Spain

Media Events, with the AFEFPI patient organization

’IPF Space’| AFEFPI

Exhibitions that last the whole week in 5 large hospitals in Madrid (Hospital La Princesa and Hospital Ramón y Cajal) and Barcelona (Hospital Bellvitge, Clinic and Vall d’Hebrón), to raise awareness on IPF with the General Public, patient groups are involved and media will be invited. Weekly. During these exhibition days, September 25th, Dr. Molina will attend the exhibition in Hospital Bellvitge in Barcelona, and will introduce the media to the ILD unit in the morning and a multidisciplinary meeting in the afternoon. September 27th, Dr Anchochea will hold a media meeting together with the AFEFPI, some nurses and IPF patients, to inform them on the difficulties that these patients experience in Hospital La Princesa in Madrid. This email address is being protected from spambots. You need JavaScript enabled to view it.; http://www.blf.org.uk

Hospital Bellvitge in Barcelona, and Hospital La Princesa in Madrid

http://www.afefpi.org

Wednesday September 26th , at 17.00 hr (fr)

Wednesday September 26th, at 17.00 hrs.

>> Paris | France

IPF Patients, Family and Care Givers Gathering, IPF-information sharing and collective air balloon release

Pelouse du ballon AIR

Information sharing event for IPF patients and their relatives, with IPF experts attending (Profs. Cottin, Crestani, Valeyre, Israel-Biet, Tazi) and IPF-information flyers. At 18.00 hrs. there will be a collective air balloon release by all attendees. Media invited. Attended by the Association Pierre Enjalran (This email address is being protected from spambots. You need JavaScript enabled to view it.) and the Alliance Maladies Rares (http://www.alliance-maladies-rares.org)

Parc Javel André Citroën, 2, Rue de la Montagne de la Fage, Paris 15e