ERS Journal publishes an article on the European IPF Patient Charter

 

ERS JOURNAL|IPF CHARTER

  

Healthcare professionals and IPF Patient organisations work hand-in-hand to shed light on the inequalities and unmet needs in IPF care across Europe

Read more: ERS Journal publishes an article on the European IPF Patient Charter

Giving a future to patients living with rare pulmonary diseases

 

IPF PATIENT GROUP | IPF CHARTER

 

IPF Groups organize the second European Parliament Roundtable entitled “Breath of Hope" on 15 September 2015.

Read more: Giving a future to patients living with rare pulmonary diseases

IPF PATIENT CHARTER

Idiopathic Pulmonary Fibrosis (IPF) is a chronic, progressive, 
unpredictable and ultimately fatal lung disease 



The European IPF Patient Charter calls for greater awareness of IPF 
and for better access to care in European countries 

 

SIGN THE CHARTER

 

The European IPF Patient Charter calls for greater awareness of IPF and for better access to care in European countries. The Charter lays down recommendations that, if adopted, would ensure improvements in IPF patients’ quality of life, whilst supporting efforts to find a cure.

 
 

Currently, between 80,000 and 111,000 people are living with Idiopathic Pulmonary Fibrosis in Europe. This fatal condition has been around for decades, yet there is no cure and only limited treatment available. IPF often develops rapidly and many patients are given a survival time of just two to five years. Each year around 35,000 people in Europe are newly diagnosed with IPF, with this number likely to increase in the future.

European IPF Patient Organisations call for patients and their families to have consistent and fair rights to:

 

1) Early and accurate diagnosis
2) Equal access to care
3) A holistic approach to standardise IPF management
4) Comprehensive and high quality information about the condition
5) Better access to palliative care and end-of-life care

SIGN THE CHARTER NOW! http://www.ipfcharter.org