IPF World Week

IPF WORLD WEEK 2018:
15 - 23 September

MISSION:

  • Creating a national and international network of people working to support patients with Idiopathic Pulmonary Fibrosis.
  • Developing a map of the Centers of Excellence in the diagnosis and treatment of IPF.
  • Raising awareness, inform, train, guide stakeholders towards this social emergency.
  • Offering support and tools to patients and their families to cope better with this disease.
  • Promoting a culture of “donation” in collaboration with the organ donors associations.
  • Promoting social awareness and sensitivity towards the dangers of smoking in collaboration with the Anti-Smoking Centers.
  • Stimulating awareness on the voluntary sector, with particular reference to the needs of the rare disease patients.
  • Promoting the knowledge on the new frontiers of biology, medicine, social sciences, psychology, analysis, law, economics, communication, etc. regarding IPF.


    Theme & Slogan 2018

    The theme to raise awareness on IPF is “Blowing soap bubbles” and the Slogan "Breath of Hope!".

    Blowing soap bubbles is a joyful activity. When you are healthy, it takes less than a second to blow bubbles. If you are a patient with IPF, this simple activity can be very challenging. The Breath of Hope Campaign aims to raise awareness of IPF while reminding about the importance of lung fitness/health.